ME/CFS Research Foundation Logo
Research areas

General

Description

General research that is not limited to a specific organ or body system dysfunction.

Research projects
50
Research types
19
Research networks
9
Working groups
9
People
119
Publications
51
Event items
5

Research projects

ACT-CFS Pilot Study - Pilot Study to Evaluate an Innovative Activity Scale for Children and Adolescents with ME/CFS
Project status:
Completed
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM),Technical University of Munich (TUM)
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Adult patients with severe and very severe ME/CFS in Austria. A multi-perspective study.
Project status:
Ongoing
Country:
Austria
Principal investigator:
Kathryn Hoffmann
Organisations:
Medical University of Vienna
Research period:
2025-01
to 2026-03
Research types:
Epidemiological research
Research areas:
General
Analysis of Blood Immune Cell Transcriptomes by Single-Cell RNA Sequencing (scRNA-seq)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Anna Aschenbrenner
Organisations:
Charité – University Medicine Berlin,University Clinic Bonn,German Center for Neurodegenerative Diseases (DZNE)
Research period:
2022-10
to not available
Research types:
Clinical research
Research areas:
Hemic and lymphatic system dysfunction, General
Analysis of Differences in Plasma Proteins Using Mass Spectrometry
Project status:
Ongoing
Country:
Germany
Principal investigator:
Markus Ralser
Organisations:
Charité – University Medicine Berlin
Research period:
2022-10
to not available
Research types:
Clinical research
Research areas:
General
Analysis of Serum/Plasma Markers and Changes in Cellular Composition and Activation of Blood Cells
Project status:
Ongoing
Country:
Germany
Principal investigator:
Birgit Sawitzki
Organisations:
Charité – University Medicine Berlin,Berlin Institute of Health at Charité (BIH)
Research period:
2022-10
to not available
Research types:
Clinical research
Research areas:
General
Antibody repertoires against microbiota as biomarkers for ME/CFS (CFSmicroAbs)
Project status:
Ongoing
Country:
Netherlands
Principal investigator:
A.P. (Alexandra) Zhernakova
Organisations:
University of Groningen
Research period:
2023-09
to 2027-09
Research types:
Epidemiological research
Research areas:
Infections, Immune system dysfunction, Digestive system dysfunction, General
Assessing healthcare for patients with post-acute infection syndromes like ME/CFS (Care4PAIS&ME/CFS)
Project status:
Ongoing
Country:
Austria
Principal investigator:
Golda Schlaff
Organisations:
Medical University of Vienna,University of Vienna
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Autoimmunity Risk Variants in the PTPN22 and CTLA4 Genes are Associated with Infectious Onset of ME/CFS
Project status:
Completed
Country:
Germany
Principal investigator:
Sophie Steiner
Organisations:
Charité – University Medicine Berlin
Research period:
Not available
Research types:
Basic research
Research areas:
Immune system dysfunction, Genetic risk factors, General
Bavarian Network for Researching ME/CFS (BAYNET FOR ME/CFS)
Project status:
Completed
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM),Technical University of Munich (TUM)
Research period:
2022-10
to 2024-03
Research types:
Epidemiological research
Research areas:
General
Biosamples, GPCR-Autoantibodies, Data Management and Bioinformatics
Project status:
Ongoing
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM),Charité – University Medicine Berlin,University Clinic Schleswig-Holstein (UKSH) - Luebeck,Max Delbrück Center (MDC),Technical University of Munich (TUM)
Research period:
2022-08
to 2025-07
Research types:
Basic research
Research areas:
Immune system dysfunction, General
COVID-19 Research Infrastructure Platform for Children and Adolescents (coverCHILD)
Project status:
Completed
Country:
Germany
Principal investigator:
Reinhard Berner, Ulrike Ravens-Sieberer
Organisations:
University Clinic Dresden,University Hospital rechts der Isar (MRI TUM),University Medical Center Hamburg-Eppendorf (UKE),Technical University of Munich (TUM)
Research period:
2022-09
to 2023-12
Research types:
Epidemiological research
Research areas:
General
COVIDOM: Longterm Morbidity of SARS-CoV-2 Infection and COVID-19 Disease - Consequences for Health Status and Quality of Life (NAPKON-POP)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Stefan Schreiber
Organisations:
University Clinic Schleswig-Holstein (UKSH) - Kiel
Research period:
2020-11
to 2030-12
Research types:
Epidemiological research
Research areas:
General
Care Model for Patients with ME/CFS (CFS_CARE)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Carmen Scheibenbogen
Organisations:
Charité – University Medicine Berlin
Research period:
2021-12
to 2024-12
Research types:
Epidemiological research
Research areas:
General, Mental health
Care for ME/CFS
Project status:
Ongoing
Country:
Austria
Principal investigator:
Eva Untersmayr-Elsenhuber
Organisations:
Medical University of Vienna
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Care situation and needs of young people with post-viral symptom complexes: Status quo analysis and development of a care concept (KidsCarePVS)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM),Technical University of Munich (TUM)
Research period:
2024-10
to 2027-09
Research types:
Epidemiological research
Research areas:
General
Clinic and granulocytes
Project status:
Ongoing
Country:
Germany
Principal investigator:
Alexander Dejaco
Organisations:
University Clinic Regensburg
Research period:
2024-11
to 2027-11
Research types:
Basic research
Research areas:
Immune system dysfunction, Cardiovascular system dysfunction, General
Computer-based Clustering of Chronic Fatigue Syndrome Patients (CCCFS)
Project status:
Completed
Country:
Austria
Principal investigator:
Eva Untersmayr-Elsenhuber
Organisations:
Medical University of Vienna,University of Heidelberg
Research period:
2021-03
to 2022-03
Research types:
Epidemiological research
Research areas:
General
Converging neurobiological and immune pathways in ME/CFS and post-infectious fatigue syndromes (PIFS)
Project status:
Ongoing
Country:
Netherlands
Principal investigator:
Ruud Raijmakers
Organisations:
Radboud University Medical Centre (Radboud UMC)
Research period:
2023-01
to 2027-12
Research types:
Epidemiological research
Research areas:
Immune system dysfunction, Nervous system dysfunction, Nutritional and metabolic system dysfunction, Endocrine system dysfunction, General
Development and analysis of a SARS-CoV-2-induced golden hamster animal model for ME/CFS
Project status:
Ongoing
Country:
Germany
Principal investigator:
Michael Muehlebach
Organisations:
Paul-Ehrlich-Institute (PEI)
Research period:
2024-11
to 2027-11
Research types:
Basic research
Research areas:
Immune system dysfunction, Nervous system dysfunction, Endocrine system dysfunction, General
Development and evaluation of interactive seminars for prospective doctors to destigmatise people with ME/CFS (SEE-ME)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Christine Blome, Rachel Sommer
Organisations:
University Medical Center Hamburg-Eppendorf (UKE)
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Diagnostic latency in ME/CFS and post-COVID: causes, consequences and potential for improvement – ​​a mixed methods study (DiaMECO)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Christine Blome
Organisations:
University Medical Center Hamburg-Eppendorf (UKE)
Research period:
2024-10
to 2027-09
Research types:
Epidemiological research
Research areas:
General
Effectiveness of Acceptance Commitment Therapy or Micro Breaks in Patients With CFS/ME
Project status:
Ongoing
Country:
Switzerland
Principal investigator:
Sarah Schiebler
Organisations:
University Hospital Zurich (USZ)
Research period:
2023-08
to 2026-07
Research types:
Clinical research
Research areas:
General, Mental health
Experiences of ME/CFS Patients in the German Healthcare System - A Qualitative Study on a Very Special Doctor-Patient Relationship
Project status:
Completed
Country:
Germany
Principal investigator:
Lotte Habermann-Horstmeier
Organisations:
Villingen Institute of Public Health (VIPH)
Research period:
2022-09
to not available
Research types:
Epidemiological research
Research areas:
General, Mental health
GaPaMUC-CFS
Project status:
Completed
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM),Technical University of Munich (TUM)
Research period:
2020-09
to 2022-06
Research types:
Epidemiological research
Research areas:
General
Genetic architecture of chronic fatigue syndrome
Project status:
Ongoing
Country:
Austria
Principal investigator:
Matthias Wielscher
Organisations:
Medical University of Vienna
Research period:
2025-01
to 2025-12
Research types:
Basic research
Research areas:
Genetic risk factors, General
HHV-6 Mediated Mitochondrial Modulation and Its Association to ME/CFS
Project status:
Completed
Country:
Latvia, Germany
Principal investigator:
Bhupesh K. Prusty
Organisations:
Charité – University Medicine Berlin,University Clinic Erlangen,University of Wuerzburg,University of California San Diego,Riga Stradins University
Research period:
Not available
Research types:
Basic research
Research areas:
Infections, Nutritional and metabolic system dysfunction, General
Harmonisation and standardisation of the diagnosis of PEM in ME/CFS patients
Project status:
Ongoing
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM),Technical University of Munich (TUM)
Research period:
2024-11
to 2027-11
Research types:
Clinical research
Research areas:
General
Harmonised clinical phenotyping and biological signatures
Project status:
Ongoing
Country:
Germany
Principal investigator:
Martina Seifert
Organisations:
Charité – University Medicine Berlin
Research period:
2024-11
to 2027-11
Research types:
Basic research, Clinical research
Research areas:
Nervous system dysfunction, Cardiovascular system dysfunction, General
Health Care Workers Affected by Long COVID and Exhaustion/Fatigue (HALE Study)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Frauke Mattner
Organisations:
Clinics of the City of Cologne
Research period:
2022-07
to not available
Research types:
Epidemiological research
Research areas:
General
Identification of Characteristic Biological Factors of a Post-COVID-19 Syndrome (PRAM)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Evelyn Lamy
Organisations:
University of Augsburg
Research period:
2023-06
to 2024-12
Research types:
Epidemiological research
Research areas:
Nutritional and metabolic system dysfunction, General
Importance of Raman spectroscopic signatures from blood cells in ME/CFS diagnostics
Project status:
Ongoing
Country:
Germany
Principal investigator:
Anuradha Ramoji
Organisations:
Leibniz Institute of Photonic Technology
Research period:
Not available
Research types:
Basic research
Research areas:
General
Improving the care situation for those affected by Long COVID (LCovB)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Johanna Schuster
Organisations:
Charité – University Medicine Berlin
Research period:
2024-03
to 2027-02
Research types:
Epidemiological research
Research areas:
General
Instrument to support diagnosis, severity assessment, management and follow-up of post-viral syndromes in general practice (POSH)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Attila Altiner
Organisations:
University Clinic Heidelberg
Research period:
2024-07
to 2027-06
Research types:
Epidemiological research
Research areas:
General
Integrated care of ME/CFS in children and adolescents using app-based telemonitoring
Project status:
Ongoing
Country:
Germany
Principal investigator:
Jeremy Schmidt, Zoe Oftring
Organisations:
University Clinic Giessen and Marburg,Clinic Bethel
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Integrative data analyses of human and animal model samples for ME/CFS
Project status:
Ongoing
Country:
Germany
Principal investigator:
Volker Bruns
Organisations:
Fraunhofer Institute for Integrated Circuits (IIS)
Research period:
2024-11
to 2027-11
Research types:
Basic research
Research areas:
Immune system dysfunction, Nervous system dysfunction, Endocrine system dysfunction, General
Integrative transcriptome analyses of human and animal model samples for ME/CFS
Project status:
Ongoing
Country:
Germany
Principal investigator:
Emanuel Wyler
Organisations:
Max Delbrück Center (MDC)
Research period:
2024-11
to 2027-11
Research types:
Basic research
Research areas:
Immune system dysfunction, Nervous system dysfunction, Endocrine system dysfunction, General
ME/CFS Biobank Austria
Project status:
Ongoing
Country:
Austria
Principal investigator:
Eva Untersmayr-Elsenhuber
Organisations:
Medical University of Vienna
Research period:
2023-09
to not available
Research types:
Basic research
Research areas:
General
ME/CFS Kids Bavaria
Project status:
Completed
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM),Technical University of Munich (TUM)
Research period:
2021-12
to 2023-12
Research types:
Epidemiological research
Research areas:
General
ME/CFS Registry and Biobank (MECFS-R & MECFS-Bio)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM),Charité – University Medicine Berlin,Technical University of Munich (TUM)
Research period:
2022-01
to 2024-12
Research types:
Epidemiological research
Research areas:
General
Molecular immunological characterisation & multimodal-multicenter intersectoral care for Long COVID in children and adolescents in Baden-Wuerttemberg (MOVE-COVID-BW)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Roland Elling
Organisations:
University Clinic Freiburg
Research period:
2023-10
to 2024-12
Research types:
Epidemiological research
Research areas:
General
Munich Cohort Study With Biobank for Children, Adolescents, and Young Adults With Post-infection ME/CFS (MUC-CFS)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM),Technical University of Munich (TUM)
Research period:
2019-01
to 2029-01
Research types:
Epidemiological research
Research areas:
General
Occurence and Characterization of the Chronic Fatigue Syndrome in the Berlin Subcohort of the Population-Based NAPKON-POP (COVIDOM) Study
Project status:
Ongoing
Country:
Germany
Principal investigator:
Lilian Krist
Organisations:
Charité – University Medicine Berlin
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Post Acute Infection Syndromes Interdisciplinary Care Berlin (PAIS Care Berlin)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Carmen Scheibenbogen
Organisations:
Charité – University Medicine Berlin
Research period:
2024-11
to 2028-12
Research types:
Epidemiological research
Research areas:
General
Post-COVID-Kids Bavaria 1.0
Project status:
Completed
Country:
Germany
Principal investigator:
Uta Behrends, Michael Kabesch
Organisations:
University Hospital rechts der Isar (MRI TUM),Technical University of Munich (TUM),Barmherzige Brüder Clinic St. Hedwig Regensburg
Research period:
2021-09
to 2023-06
Research types:
Epidemiological research
Research areas:
General
Post-COVID-Kids Bavaria 2.0
Project status:
Ongoing
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM),Technical University of Munich (TUM)
Research period:
2023-09
to 2024-12
Research types:
Epidemiological research
Research areas:
General
Study on Long COVID and ME/CFS Symptoms in Patients with Mental Disabilities and the Experiences of Patients, Relatives and Carers in the German Healthcare System
Project status:
Ongoing
Country:
Germany
Principal investigator:
Lotte Habermann-Horstmeier
Organisations:
Villingen Institute of Public Health (VIPH)
Research period:
2022-09
to not available
Research types:
Epidemiological research
Research areas:
General, Mental health
Swiss ME/CFS Study
Project status:
Completed
Country:
Switzerland
Principal investigator:
Rea Tschopp
Organisations:
Swiss Tropical And Public Health Institute,University of Basel
Research period:
2021-06
to 2021-09
Research types:
Epidemiological research
Research areas:
General, Mental health
The Role of Hidden Viral Infections in Peripheral Blood and Gut-Specific Lymphatic Tissue in the Pathogenesis of ME/CFS (UNRAVELING ME/CFS)
Project status:
Ongoing
Country:
USA, Austria
Principal investigator:
Alexander Zoufaly
Organisations:
Clinic Favoriten Vienna,Cornell University
Research period:
Not available
Research types:
Epidemiological research
Research areas:
Hemic and lymphatic system dysfunction, Infections, General
The impact of mast cell activation on epithelial and endothelial barrier dysregulation in post-infectious ME/CFS (DegranulateME)
Project status:
Ongoing
Country:
Austria
Principal investigator:
Eva Untersmayr-Elsenhuber
Organisations:
FH Joanneum University of Applied Sciences,Medical University of Vienna
Research period:
2025-01
to 2025-12
Research types:
Basic research
Research areas:
Infections, Immune system dysfunction, Nutritional and metabolic system dysfunction, General
Treatment courses and determinants in Long COVID and other post-viral symptom complexes (BD-LC-PS)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Thomas Grobe
Organisations:
aQua Institute
Research period:
2025-04
to 2028-03
Research types:
Epidemiological research
Research areas:
General

Contact

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researchregister@mecfs-research.org

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