Epidemiological research - Observational - Cohort study
Description
Observational epidemiological research in which a group of people/patients is recruited to explore their health in relation to specific variables. Description adapted from: https://www.aerzteblatt.de/int/archive/article/64227.
Research projects
29
Research areas
43
Research networks
3
Working groups
15
People
82
Publications
29
Event items
0
Research projects
A role of microbiome in the pathogenesis of ME/CFS: a population-based study
Project status:
Ongoing
Country:
Netherlands
Principal investigator:
Aleksandr Kurilshchikov
Organisations:
University of Groningen
Research period:
2023-01
to 2027-12
to 2027-12
Research types:
Epidemiological research
Research areas:
Digestive system dysfunction
ACT-CFS Pilot Study - Pilot Study to Evaluate an Innovative Activity Scale for Children and Adolescents with ME/CFS
Project status:
Completed
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Adult patients with severe and very severe ME/CFS in Austria. A multi-perspective study.
Project status:
Ongoing
Country:
Austria
Principal investigator:
Kathryn Hoffmann
Organisations:
Medical University of Vienna
Research period:
2025-01
to 2026-03
to 2026-03
Research types:
Epidemiological research
Research areas:
General
An integrative approach for primary care-coordinated, needs-based care for post-viral illnesses and ME/CFS to improve participation (GRACI)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Josefine Schulze, Silke Jankowiak
Organisations:
University Medical Center Hamburg-Eppendorf (UKE), University of Ulm
Research period:
2024-11
to 2028-10
to 2028-10
Research types:
Epidemiological research
Research areas:
General
Assessing healthcare for patients with post-acute infection syndromes like ME/CFS (Care4PAIS&ME/CFS)
Project status:
Ongoing
Country:
Austria
Principal investigator:
Golda Schlaff
Organisations:
Medical University of Vienna, University of Vienna
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
COVID-19 Research Infrastructure Platform for Children and Adolescents (coverCHILD)
Project status:
Completed
Country:
Germany
Principal investigator:
Reinhard Berner, Ulrike Ravens-Sieberer
Organisations:
University Hospital rechts der Isar (MRI TUM), University Medical Center Hamburg-Eppendorf (UKE), University Clinic Dresden, Technical University of Munich (TUM)
Research period:
2022-09
to 2023-12
to 2023-12
Research types:
Epidemiological research
Research areas:
General
COVIDOM: Longterm Morbidity of SARS-CoV-2 Infection and COVID-19 Disease - Consequences for Health Status and Quality of Life (NAPKON-POP)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Stefan Schreiber
Organisations:
University Clinic Schleswig-Holstein (UKSH) - Kiel
Research period:
2020-11
to 2030-12
to 2030-12
Research types:
Epidemiological research
Research areas:
General
Care for ME/CFS
Project status:
Ongoing
Country:
Austria
Principal investigator:
Eva Untersmayr-Elsenhuber
Organisations:
Medical University of Vienna
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Care situation and needs of young people with post-viral symptom complexes: Status quo analysis and development of a care concept (KidsCarePVS)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
2024-10
to 2027-09
to 2027-09
Research types:
Epidemiological research
Research areas:
General
Computer-based Clustering of Chronic Fatigue Syndrome Patients (CCCFS)
Project status:
Completed
Country:
Austria
Principal investigator:
Eva Untersmayr-Elsenhuber
Organisations:
Medical University of Vienna, University of Heidelberg
Research period:
2021-03
to 2022-03
to 2022-03
Research types:
Epidemiological research
Research areas:
General
Diagnostic latency in ME/CFS and post-COVID: causes, consequences and potential for improvement – a mixed methods study (DiaMECO)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Christine Blome
Organisations:
University Medical Center Hamburg-Eppendorf (UKE)
Research period:
2024-10
to 2027-09
to 2027-09
Research types:
Epidemiological research
Research areas:
General
Experiences of ME/CFS Patients in the German Healthcare System - A Qualitative Study on a Very Special Doctor-Patient Relationship
Project status:
Completed
Country:
Germany
Principal investigator:
Lotte Habermann-Horstmeier
Organisations:
Villingen Institute of Public Health (VIPH)
Research period:
2022-09
to not available
to not available
Research types:
Epidemiological research
Research areas:
General, Mental health
Follow-Up of Respiratory Infections in Schleswig-Holstein (FRISH)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Folke Brinkmann
Organisations:
University Clinic Schleswig-Holstein (UKSH) - Luebeck, Research Center Borstel, Leibniz Lung Center
Research period:
Not available
Research types:
Epidemiological research
Research areas:
Infections
Healthy Control Population für PAIS-ME/CFS (HelP)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
2025-01
to 2029-12
to 2029-12
Research types:
Epidemiological research
Research areas:
Hemic and lymphatic system dysfunction, Immune system dysfunction, Nervous system dysfunction, Cardiovascular system dysfunction
Improving the care situation for those affected by Long COVID (LCovB)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Johanna Schuster
Organisations:
Charité – University Medicine Berlin
Research period:
2024-03
to 2027-02
to 2027-02
Research types:
Epidemiological research
Research areas:
General
Instrument to support diagnosis, severity assessment, management and follow-up of post-viral syndromes in general practice (POSH)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Attila Altiner
Organisations:
University Clinic Heidelberg
Research period:
2024-07
to 2027-06
to 2027-06
Research types:
Epidemiological research
Research areas:
General
Long-term health consequences after SARS-CoV-2 infection in a population-based study setting in 3 regions in Germany (COVIDOM+)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Thomas Bahmer, Jan Heyckendorf
Organisations:
University Clinic Schleswig-Holstein (UKSH) - Luebeck
Research period:
2025-01
to 2026-12
to 2026-12
Research types:
Epidemiological research
Research areas:
General
Molecular immunological characterisation & multimodal-multicenter intersectoral care for Long COVID in children and adolescents in Baden-Wuerttemberg (MOVE-COVID-BW)
Project status:
Completed
Country:
Germany
Principal investigator:
Roland Elling
Organisations:
University Clinic Freiburg
Research period:
2023-10
to 2024-12
to 2024-12
Research types:
Epidemiological research
Research areas:
General
Molecular immunological characterisation & multimodal-multicenter intersectoral care for ME/CFS in children and adolescents in Baden-Wuerttemberg (MOVE-ME/CFS-BW)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Thorsten Langer
Organisations:
University Clinic Freiburg
Research period:
2025-03
to not available
to not available
Research types:
Epidemiological research
Research areas:
Immune system dysfunction, General
Munich Cohort Study With Biobank for Children, Adolescents, and Young Adults With Post-infection ME/CFS (MUC-CFS)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
2019-01
to 2029-01
to 2029-01
Research types:
Epidemiological research
Research areas:
General
Occurence and Characterization of the Chronic Fatigue Syndrome in the Berlin Subcohort of the Population-Based NAPKON-POP (COVIDOM) Study
Project status:
Ongoing
Country:
Germany
Principal investigator:
Lilian Krist
Organisations:
Charité – University Medicine Berlin
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Post Acute Infectious Syndromes Interdisciplinary Care Berlin (PAIS Care Berlin)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Carmen Scheibenbogen
Organisations:
Charité – University Medicine Berlin, Max Delbrück Center (MDC)
Research period:
2024-11
to 2028-12
to 2028-12
Research types:
Epidemiological research
Research areas:
General
Post-acute viral infection syndromes in Berlin: Structured cross-sectoral and interdisciplinary care (PAIS Berlin)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Lorena Dini
Organisations:
Charité – University Medicine Berlin
Research period:
2024-10
to 2027-09
to 2027-09
Research types:
Epidemiological research
Research areas:
General
Primary care-based, cross-sectoral care concept for people with post-acute infection syndromes (CONFIDENCE)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Attila Altiner
Organisations:
University Clinic Heidelberg
Research period:
2026-01
to 2028-12
to 2028-12
Research types:
Epidemiological research
Research areas:
General
Study on Infectious Mononucleosis in Munich (IMMUC)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
2017-03
to 2025-12
to 2025-12
Research types:
Epidemiological research
Research areas:
Infections
Swiss ME/CFS Study
Project status:
Completed
Country:
Switzerland
Principal investigator:
Rea Tschopp
Organisations:
Swiss Tropical And Public Health Institute, University of Basel
Research period:
2021-06
to not available
to not available
Research types:
Epidemiological research
Research areas:
General, Mental health
TeleNeurological outpatient care in Brandenburg and Mecklenburg-Western Pomerania (TENEAM)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Christiana Franke
Organisations:
Charité – University Medicine Berlin
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
The cost of stigma: Stigmatisation of ME/CFS and Post-COVID and its impact on the quality and cost of health care (StiMECO)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Christine Blome
Organisations:
University Medical Center Hamburg-Eppendorf (UKE)
Research period:
2024-11
to 2027-01
to 2027-01
Research types:
Epidemiological research
Research areas:
General
Treatment courses and determinants in Long COVID and other post-viral symptom complexes (BD-LC-PS)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Thomas Grobe
Organisations:
aQua Institute
Research period:
2025-04
to 2028-03
to 2028-03
Research types:
Epidemiological research
Research areas:
General
Contact
ME/CFS Research Foundation
Ballindamm 27, 20095 Hamburg, Germany
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