Epidemiological research
Description
Epidemiological research is mostly centred around the distribution and temporal changes in the frequency of diseases and their causes. Analogous to clinical research, epidemiology also distinguishes between interventional and observational studies. Description adapted from: https://www.aerzteblatt.de/int/archive/article/64227.
Research projects
39
Research areas
63
Research networks
4
Working groups
19
People
120
Publications
49
Event items
0
Research projects
Care Model for Patients with ME/CFS (CFS_CARE)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Carmen Scheibenbogen
Organisations:
Charité – University Medicine Berlin, Max Delbrück Center (MDC)
Research period:
2021-12
to 2024-12
to 2024-12
Research types:
Epidemiological research
Research areas:
General, Mental health
Development and evaluation of interactive seminars for prospective doctors to destigmatise people with ME/CFS (SEE-ME)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Christine Blome, Rachel Sommer
Organisations:
University Medical Center Hamburg-Eppendorf (UKE)
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Establishment of a Multicenter, Cross-Age Clinical ME/CFS Registry (MECFS-R) and Biobank (MECFS-Bio)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
Charité – University Medicine Berlin, University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
2022-01
to 2024-12
to 2024-12
Research types:
Epidemiological research
Research areas:
General
Integrated care of ME/CFS in children and adolescents using app-based telemonitoring
Project status:
Ongoing
Country:
Germany
Principal investigator:
Jeremy Schmidt, Zoe Oftring
Organisations:
University Clinic Giessen and Marburg, Clinic Bethel
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
ME/CFS Kids Bavaria
Project status:
Completed
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
2021-12
to 2023-12
to 2023-12
Research types:
Epidemiological research
Research areas:
General
Post-COVID-Kids Bavaria 1.0
Project status:
Completed
Country:
Germany
Principal investigator:
Uta Behrends, Michael Kabesch
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM), Barmherzige Brüder Clinic St. Hedwig Regensburg
Research period:
2021-09
to 2023-06
to 2023-06
Research types:
Epidemiological research
Research areas:
General
Post-COVID-Kids Bavaria 2.0
Project status:
Ongoing
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
2023-09
to 2024-12
to 2024-12
Research types:
Epidemiological research
Research areas:
General
Bavarian Network for Researching ME/CFS (BAYNET FOR ME/CFS)
Project status:
Completed
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
2022-10
to 2024-03
to 2024-03
Research types:
Epidemiological research
Research areas:
General
GaPaMUC-CFS
Project status:
Completed
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
2020-09
to 2022-06
to 2022-06
Research types:
Epidemiological research
Research areas:
General
Health Care Workers Affected by Long COVID and Exhaustion/Fatigue (HALE Study)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Frauke Mattner
Organisations:
Clinics of the City of Cologne
Research period:
2022-07
to not available
to not available
Research types:
Epidemiological research
Research areas:
General
Identification of Characteristic Biological Factors of a Post-COVID-19 Syndrome (PRAM)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Evelyn Lamy
Organisations:
University of Augsburg
Research period:
2023-06
to 2024-12
to 2024-12
Research types:
Epidemiological research
Research areas:
Nutritional and metabolic system dysfunction, General
POTS-CFS Study: Orthostatic Intolerance in the Context of Pediatric ME/CFS (POTS-CFS)
Project status:
Completed
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), University Clinic Aachen, Technical University of Munich (TUM)
Research period:
2021-12
to 2022-11
to 2022-11
Research types:
Epidemiological research
Research areas:
Nervous system dysfunction, Cardiovascular system dysfunction
A role of microbiome in the pathogenesis of ME/CFS: a population-based study
Project status:
Ongoing
Country:
Netherlands
Principal investigator:
Aleksandr Kurilshchikov
Organisations:
University of Groningen
Research period:
2023-01
to 2027-12
to 2027-12
Research types:
Epidemiological research
Research areas:
Digestive system dysfunction
ACT-CFS Pilot Study - Pilot Study to Evaluate an Innovative Activity Scale for Children and Adolescents with ME/CFS
Project status:
Completed
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Adult patients with severe and very severe ME/CFS in Austria. A multi-perspective study.
Project status:
Ongoing
Country:
Austria
Principal investigator:
Kathryn Hoffmann
Organisations:
Medical University of Vienna
Research period:
2025-01
to 2026-03
to 2026-03
Research types:
Epidemiological research
Research areas:
General
Assessing healthcare for patients with post-acute infection syndromes like ME/CFS (Care4PAIS&ME/CFS)
Project status:
Ongoing
Country:
Austria
Principal investigator:
Golda Schlaff
Organisations:
Medical University of Vienna, University of Vienna
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
COVID-19 Research Infrastructure Platform for Children and Adolescents (coverCHILD)
Project status:
Completed
Country:
Germany
Principal investigator:
Reinhard Berner, Ulrike Ravens-Sieberer
Organisations:
University Medical Center Hamburg-Eppendorf (UKE), University Clinic Dresden, University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
2022-09
to 2023-12
to 2023-12
Research types:
Epidemiological research
Research areas:
General
COVIDOM: Longterm Morbidity of SARS-CoV-2 Infection and COVID-19 Disease - Consequences for Health Status and Quality of Life (NAPKON-POP)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Stefan Schreiber
Organisations:
University Clinic Schleswig-Holstein (UKSH) - Kiel
Research period:
2020-11
to 2030-12
to 2030-12
Research types:
Epidemiological research
Research areas:
General
Care for ME/CFS
Project status:
Ongoing
Country:
Austria
Principal investigator:
Eva Untersmayr-Elsenhuber
Organisations:
Medical University of Vienna
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Care situation and needs of young people with post-viral symptom complexes: Status quo analysis and development of a care concept (KidsCarePVS)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
2024-10
to 2027-09
to 2027-09
Research types:
Epidemiological research
Research areas:
General
Computer-based Clustering of Chronic Fatigue Syndrome Patients (CCCFS)
Project status:
Completed
Country:
Austria
Principal investigator:
Eva Untersmayr-Elsenhuber
Organisations:
Medical University of Vienna, University of Heidelberg
Research period:
2021-03
to 2022-03
to 2022-03
Research types:
Epidemiological research
Research areas:
General
Diagnostic latency in ME/CFS and post-COVID: causes, consequences and potential for improvement – a mixed methods study (DiaMECO)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Christine Blome
Organisations:
University Medical Center Hamburg-Eppendorf (UKE)
Research period:
2024-10
to 2027-09
to 2027-09
Research types:
Epidemiological research
Research areas:
General
Experiences of ME/CFS Patients in the German Healthcare System - A Qualitative Study on a Very Special Doctor-Patient Relationship
Project status:
Completed
Country:
Germany
Principal investigator:
Lotte Habermann-Horstmeier
Organisations:
Villingen Institute of Public Health (VIPH)
Research period:
2022-09
to not available
to not available
Research types:
Epidemiological research
Research areas:
General, Mental health
Follow-Up of Respiratory Infections in Schleswig-Holstein (FRISH)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Folke Brinkmann
Organisations:
University Clinic Schleswig-Holstein (UKSH) - Luebeck, Research Center Borstel, Leibniz Lung Center
Research period:
Not available
Research types:
Epidemiological research
Research areas:
Infections
Improving the care situation for those affected by Long COVID (LCovB)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Johanna Schuster
Organisations:
Charité – University Medicine Berlin
Research period:
2024-03
to 2027-02
to 2027-02
Research types:
Epidemiological research
Research areas:
General
Instrument to support diagnosis, severity assessment, management and follow-up of post-viral syndromes in general practice (POSH)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Attila Altiner
Organisations:
University Clinic Heidelberg
Research period:
2024-07
to 2027-06
to 2027-06
Research types:
Epidemiological research
Research areas:
General
Molecular immunological characterisation & multimodal-multicenter intersectoral care for Long COVID in children and adolescents in Baden-Wuerttemberg (MOVE-COVID-BW)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Roland Elling
Organisations:
University Clinic Freiburg
Research period:
2023-10
to 2024-12
to 2024-12
Research types:
Epidemiological research
Research areas:
General
Munich Cohort Study With Biobank for Children, Adolescents, and Young Adults With Post-infection ME/CFS (MUC-CFS)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
2019-01
to 2029-01
to 2029-01
Research types:
Epidemiological research
Research areas:
General
Occurence and Characterization of the Chronic Fatigue Syndrome in the Berlin Subcohort of the Population-Based NAPKON-POP (COVIDOM) Study
Project status:
Ongoing
Country:
Germany
Principal investigator:
Lilian Krist
Organisations:
Charité – University Medicine Berlin
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Post Acute Infection Syndromes Interdisciplinary Care Berlin (PAIS Care Berlin)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Carmen Scheibenbogen
Organisations:
Charité – University Medicine Berlin, Max Delbrück Center (MDC)
Research period:
2024-11
to 2028-12
to 2028-12
Research types:
Epidemiological research
Research areas:
General
Study on Infectious Mononucleosis in Munich (IMMUC)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
2017-03
to 2025-12
to 2025-12
Research types:
Epidemiological research
Research areas:
Infections
Study on Long COVID and ME/CFS Symptoms in Patients with Mental Disabilities and the Experiences of Patients, Relatives and Carers in the German Healthcare System
Project status:
Ongoing
Country:
Germany
Principal investigator:
Lotte Habermann-Horstmeier
Organisations:
Villingen Institute of Public Health (VIPH)
Research period:
2022-09
to not available
to not available
Research types:
Epidemiological research
Research areas:
General, Mental health
Swiss ME/CFS Study
Project status:
Completed
Country:
Switzerland
Principal investigator:
Rea Tschopp
Organisations:
Swiss Tropical And Public Health Institute, University of Basel
Research period:
2021-06
to not available
to not available
Research types:
Epidemiological research
Research areas:
General, Mental health
TeleNeurological outpatient care in Brandenburg and Mecklenburg-Western Pomerania (TENEAM)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Christiana Franke
Organisations:
Charité – University Medicine Berlin
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Treatment courses and determinants in Long COVID and other post-viral symptom complexes (BD-LC-PS)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Thomas Grobe
Organisations:
aQua Institute
Research period:
2025-04
to 2028-03
to 2028-03
Research types:
Epidemiological research
Research areas:
General
The Role of Hidden Viral Infections in Peripheral Blood and Gut-Specific Lymphatic Tissue in the Pathogenesis of ME/CFS (UNRAVELING ME/CFS)
Project status:
Ongoing
Country:
USA, Austria
Principal investigator:
Alexander Zoufaly
Organisations:
Clinic Favoriten Vienna, Cornell University
Research period:
Not available
Research types:
Epidemiological research
Research areas:
Hemic and lymphatic system dysfunction, Infections, General
Antibody repertoires against microbiota as biomarkers for ME/CFS (CFSmicroAbs)
Project status:
Ongoing
Country:
Netherlands
Principal investigator:
A.P. (Alexandra) Zhernakova
Organisations:
University of Groningen
Research period:
2023-09
to 2027-09
to 2027-09
Research types:
Epidemiological research
Research areas:
Infections, Immune system dysfunction, Digestive system dysfunction, General
Converging neurobiological and immune pathways in ME/CFS and post-infectious fatigue syndromes (PIFS)
Project status:
Ongoing
Country:
Netherlands
Principal investigator:
Ruud Raijmakers
Organisations:
Radboud University Medical Centre (Radboud UMC)
Research period:
2023-01
to 2027-12
to 2027-12
Research types:
Epidemiological research
Research areas:
Immune system dysfunction, Nervous system dysfunction, Nutritional and metabolic system dysfunction, Endocrine system dysfunction, General
Identifying causal biological mechanisms in ME/CFS by a functional genetic approach
Project status:
Ongoing
Country:
Netherlands
Principal investigator:
C. (Cindy) Boer
Organisations:
Erasmus Medical Center (Erasmus MC)
Research period:
2023-01
to 2027-12
to 2027-12
Research types:
Epidemiological research
Research areas:
Genetic risk factors
Contact
ME/CFS Research Foundation
Ballindamm 27, 20095 Hamburg, Germany
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