Patient care
Description
Research and recommendations on the provision of the full range of personal health services for diagnosis, treatment, follow-up and rehabilitation of patients. Description adapted from: https://www.ncbi.nlm.nih.gov/mesh/68003191.
Research projects
29
Research types
10
Research networks
1
Working groups
13
People
79
Publications
26
Event items
11
Research projects
ACT-CFS Pilot Study - Pilot Study to Evaluate an Innovative Activity Scale for Children and Adolescents with ME/CFS
Project status:
Completed
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Adult patients with severe and very severe ME/CFS in Austria. A multi-perspective study.
Project status:
Ongoing
Country:
Austria
Principal investigator:
Kathryn Hoffmann
Organisations:
Medical University of Vienna
Research period:
2025-01
to 2026-03
to 2026-03
Research types:
Epidemiological research
Research areas:
General
An integrative approach for primary care-coordinated, needs-based care for post-viral illnesses and ME/CFS to improve participation (GRACI)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Josefine Schulze, Silke Jankowiak
Organisations:
University Medical Center Hamburg-Eppendorf (UKE), University of Ulm
Research period:
2024-11
to 2028-10
to 2028-10
Research types:
Epidemiological research
Research areas:
General
Assessing healthcare for patients with post-acute infection syndromes like ME/CFS (Care4PAIS&ME/CFS)
Project status:
Ongoing
Country:
Austria
Principal investigator:
Golda Schlaff
Organisations:
Medical University of Vienna, University of Vienna
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
CFS_CARE - Care Model for Patients with Chronic Fatigue Syndrome (ME/CFS)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Carmen Scheibenbogen
Organisations:
Charité – University Medicine Berlin, Max Delbrück Center (MDC)
Research period:
2021-12
to 2024-12
to 2024-12
Research types:
Epidemiological research
Research areas:
General, Mental health
COVID-19 Research Infrastructure Platform for Children and Adolescents (coverCHILD)
Project status:
Completed
Country:
Germany
Principal investigator:
Reinhard Berner, Ulrike Ravens-Sieberer
Organisations:
University Hospital rechts der Isar (MRI TUM), University Clinic Dresden, University Medical Center Hamburg-Eppendorf (UKE), Technical University of Munich (TUM)
Research period:
2022-09
to 2023-12
to 2023-12
Research types:
Epidemiological research
Research areas:
General
Care for ME/CFS
Project status:
Ongoing
Country:
Austria
Principal investigator:
Eva Untersmayr-Elsenhuber
Organisations:
Medical University of Vienna
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Care situation and needs of young people with post-viral symptom complexes: Status quo analysis and development of a care concept (KidsCarePVS)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
2024-10
to 2027-09
to 2027-09
Research types:
Epidemiological research
Research areas:
General
Development and evaluation of interactive seminars for prospective doctors to destigmatise people with ME/CFS (SEE-ME)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Rachel Sommer, Christine Blome
Organisations:
University Medical Center Hamburg-Eppendorf (UKE)
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Diagnostic latency in ME/CFS and post-COVID: causes, consequences and potential for improvement – a mixed methods study (DiaMECO)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Christine Blome
Organisations:
University Medical Center Hamburg-Eppendorf (UKE)
Research period:
2024-10
to 2027-09
to 2027-09
Research types:
Epidemiological research
Research areas:
General
Effectiveness of Acceptance Commitment Therapy or Micro Breaks in Patients With CFS/ME
Project status:
Ongoing
Country:
Switzerland
Principal investigator:
Sarah Schiebler
Organisations:
University Hospital Zurich (USZ)
Research period:
2023-08
to 2026-07
to 2026-07
Research types:
Clinical research
Research areas:
General, Mental health
Experiences of ME/CFS Patients in the German Healthcare System - A Qualitative Study on a Very Special Doctor-Patient Relationship
Project status:
Completed
Country:
Germany
Principal investigator:
Lotte Habermann-Horstmeier
Organisations:
Villingen Institute of Public Health (VIPH)
Research period:
2022-09
to not available
to not available
Research types:
Epidemiological research
Research areas:
General, Mental health
GaPaMUC-CFS
Project status:
Completed
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
2020-09
to 2022-06
to 2022-06
Research types:
Epidemiological research
Research areas:
General
Improving the care situation for those affected by Long COVID (LCovB)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Johanna Schuster
Organisations:
Charité – University Medicine Berlin
Research period:
2024-03
to 2027-02
to 2027-02
Research types:
Epidemiological research
Research areas:
General
Individuals and families affected by ME/CFS: Population characteristics, service use and needs
Project status:
Completed
Country:
Norway
Principal investigator:
Line Kari Melby
Organisations:
SINTEF
Research period:
2017-01
to 2023-01
to 2023-01
Research types:
Epidemiological research
Research areas:
General, Mental health
Instrument to support diagnosis, severity assessment, management and follow-up of post-viral syndromes in general practice (POSH)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Attila Altiner
Organisations:
University Clinic Heidelberg
Research period:
2024-07
to 2027-06
to 2027-06
Research types:
Epidemiological research
Research areas:
General
Integrated care of ME/CFS in children and adolescents using app-based telemonitoring
Project status:
Ongoing
Country:
Germany
Principal investigator:
Jeremy Schmidt, Zoe Oftring
Organisations:
University Clinic Giessen and Marburg, Clinic Bethel
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
ME/CFS Kids Bavaria
Project status:
Completed
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
2021-12
to 2023-12
to 2023-12
Research types:
Epidemiological research
Research areas:
General
Molecular immunological characterisation & multimodal-multicenter intersectoral care for Long COVID in children and adolescents in Baden-Wuerttemberg (MOVE-COVID-BW)
Project status:
Completed
Country:
Germany
Principal investigator:
Roland Elling
Organisations:
University Clinic Freiburg
Research period:
2023-10
to 2024-12
to 2024-12
Research types:
Epidemiological research
Research areas:
General
Molecular immunological characterisation & multimodal-multicenter intersectoral care for ME/CFS in children and adolescents in Baden-Wuerttemberg (MOVE-ME/CFS-BW)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Thorsten Langer
Organisations:
University Clinic Freiburg
Research period:
2025-03
to not available
to not available
Research types:
Epidemiological research
Research areas:
Immune system dysfunction, General
OutreAch MediCal Care for HousEbound Patients with Post-COVID Syndrome or ME/CFS of any cause (ACCESS)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Meike Dirks
Organisations:
Hannover Medical School (MHH)
Research period:
2025-01
to 2028-12
to 2028-12
Research types:
Clinical research
Research areas:
General
Post Acute Infectious Syndromes Interdisciplinary Care Berlin (PAIS Care Berlin)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Carmen Scheibenbogen
Organisations:
Charité – University Medicine Berlin, Max Delbrück Center (MDC)
Research period:
2024-11
to 2028-12
to 2028-12
Research types:
Epidemiological research
Research areas:
General
Post-COVID-Kids Bavaria 1.0
Project status:
Completed
Country:
Germany
Principal investigator:
Uta Behrends, Michael Kabesch
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM), Barmherzige Brüder Clinic St. Hedwig Regensburg
Research period:
2021-09
to 2023-06
to 2023-06
Research types:
Epidemiological research
Research areas:
General
Post-COVID-Kids Bavaria 2.0
Project status:
Completed
Country:
Germany
Principal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM), Technical University of Munich (TUM)
Research period:
2023-09
to 2024-12
to 2024-12
Research types:
Epidemiological research
Research areas:
General
Post-acute viral infection syndromes in Berlin: Structured cross-sectoral and interdisciplinary care (PAIS Berlin)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Lorena Dini
Organisations:
Charité – University Medicine Berlin
Research period:
2024-10
to 2027-09
to 2027-09
Research types:
Epidemiological research
Research areas:
General
Primary care-based, cross-sectoral care concept for people with post-acute infection syndromes (CONFIDENCE)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Attila Altiner
Organisations:
University Clinic Heidelberg
Research period:
2026-01
to 2028-12
to 2028-12
Research types:
Epidemiological research
Research areas:
General
Swiss ME/CFS Study
Project status:
Completed
Country:
Switzerland
Principal investigator:
Rea Tschopp
Organisations:
Swiss Tropical And Public Health Institute, University of Basel
Research period:
2021-06
to not available
to not available
Research types:
Epidemiological research
Research areas:
General, Mental health
TeleNeurological outpatient care in Brandenburg and Mecklenburg-Western Pomerania (TENEAM)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Christiana Franke
Organisations:
Charité – University Medicine Berlin
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
The cost of stigma: Stigmatisation of ME/CFS and Post-COVID and its impact on the quality and cost of health care (StiMECO)
Project status:
Ongoing
Country:
Germany
Principal investigator:
Christine Blome
Organisations:
University Medical Center Hamburg-Eppendorf (UKE)
Research period:
2024-11
to 2027-01
to 2027-01
Research types:
Epidemiological research
Research areas:
General