Patient care
Description
Research and recommendations on the provision of the full range of personal health services for diagnosis, treatment, follow-up and rehabilitation of patients. (Description adapted from: https://www.ncbi.nlm.nih.gov/mesh/68003191)
Research projects
14
Research types
9
Research networks
1
Working groups
8
People
37
Publications
17
Event items
3
Research projects
ACT-CFS Pilot Study - Pilot Study to Evaluate an Innovative Activity Scale for Children and Adolescents with ME/CFS
Project status:
CompletedCountry:
GermanyPrincipal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM),Technical University of Munich (TUM)
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Assessing healthcare for patients with post-acute infection syndromes like ME/CFS (Care4PAIS&ME/CFS)
Project status:
OngoingCountry:
AustriaPrincipal investigator:
Golda Schlaff
Organisations:
Medical University of Vienna,University of Vienna
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
COVID-19 Research Infrastructure Platform for Children and Adolescents (coverCHILD)
Project status:
CompletedCountry:
GermanyPrincipal investigator:
Reinhard Berner, Ulrike Ravens-Sieberer
Organisations:
University Hospital rechts der Isar (MRI TUM),University Medical Center Hamburg-Eppendorf (UKE),University Clinic Dresden,Technical University of Munich (TUM)
Research period:
2022-09
to 2023-12
to 2023-12
Research types:
Epidemiological research
Research areas:
General
Care Model for Patients with ME/CFS (CFS_CARE)
Project status:
OngoingCountry:
GermanyPrincipal investigator:
Carmen Scheibenbogen
Organisations:
Charité – University Medicine Berlin
Research period:
2021-12
to 2024-12
to 2024-12
Research types:
Epidemiological research
Research areas:
General, Mental health
Care for ME/CFS
Project status:
OngoingCountry:
AustriaPrincipal investigator:
Eva Untersmayr-Elsenhuber
Organisations:
Medical University of Vienna
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Development and evaluation of interactive seminars for prospective doctors to destigmatise people with ME/CFS (SEE-ME)
Project status:
OngoingCountry:
GermanyPrincipal investigator:
Christine Blome, Rachel Sommer
Organisations:
University Medical Center Hamburg-Eppendorf (UKE)
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Experiences of ME/CFS Patients in the German Healthcare System - A Qualitative Study on a Very Special Doctor-Patient Relationship
Project status:
CompletedCountry:
GermanyPrincipal investigator:
Lotte Habermann-Horstmeier
Organisations:
Villingen Institute of Public Health (VIPH)
Research period:
2022-09
to not available
to not available
Research types:
Epidemiological research
Research areas:
General, Mental health
GaPaMUC-CFS
Project status:
CompletedCountry:
GermanyPrincipal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM),Technical University of Munich (TUM)
Research period:
2020-09
to 2022-06
to 2022-06
Research types:
Epidemiological research
Research areas:
General
Integrated care of ME/CFS in children and adolescents using app-based telemonitoring
Project status:
OngoingCountry:
GermanyPrincipal investigator:
Jeremy Schmidt, Zoe Oftring
Organisations:
University Clinic Giessen and Marburg (UKGM),Clinic Bethel
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
ME/CFS Kids Bavaria
Project status:
CompletedCountry:
GermanyPrincipal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM),Technical University of Munich (TUM)
Research period:
2021-12
to 2023-12
to 2023-12
Research types:
Epidemiological research
Research areas:
General
Molecular immunological characterisation & multimodal-multicenter intersectoral care for Long COVID in children and adolescents in Baden-Wuerttemberg (MOVE-COVID-BW)
Project status:
OngoingCountry:
GermanyPrincipal investigator:
Roland Elling
Organisations:
University Clinic Freiburg
Research period:
2023-10
to 2024-12
to 2024-12
Research types:
Epidemiological research
Research areas:
General
Post-COVID-Kids Bavaria 1.0
Project status:
CompletedCountry:
GermanyPrincipal investigator:
Uta Behrends, Michael Kabesch
Organisations:
University Hospital rechts der Isar (MRI TUM),Technical University of Munich (TUM),Barmherzige Brüder Clinic St. Hedwig Regensburg
Research period:
2021-09
to 2023-06
to 2023-06
Research types:
Epidemiological research
Research areas:
General
Post-COVID-Kids Bavaria 2.0
Project status:
OngoingCountry:
GermanyPrincipal investigator:
Uta Behrends
Organisations:
University Hospital rechts der Isar (MRI TUM),Technical University of Munich (TUM)
Research period:
2023-09
to 2024-12
to 2024-12
Research types:
Epidemiological research
Research areas:
General
Study on Long COVID and ME/CFS Symptoms in Patients with Mental Disabilities and the Experiences of Patients, Relatives and Carers in the German Healthcare System
Project status:
OngoingCountry:
GermanyPrincipal investigator:
Lotte Habermann-Horstmeier
Organisations:
Villingen Institute of Public Health (VIPH)
Research period:
2022-09
to not available
to not available
Research types:
Epidemiological research
Research areas:
General, Mental health
Contact
ME/CFS Research Foundation
Ballindamm 27, 20095 Hamburg, Germany
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