Patient-Reported Outcomes
About
Organisation:
Working group head:
Location:
Hamburg, Germany
Research types:
Epidemiological research
Link
Website
Description
The group is a multidisciplinary research group of the Institute for Health Care Research in Dermatology and Nursing (IVDP) at the University Medical Center Hamburg-Eppendorf (UKE). Their mission is to strengthen the focus on the patient perspective in medicine by using patient-reported outcome measures (PROMs) and by learning about the needs and experiences of people living with a chronic disease. The group develops and validates PROMs, uses them in quantitative surveys, and enhances the understanding of the patient perspective with the help of qualitative methods. The group is part of the Hamburg Center for Health Economics (HCHE) and collaborates with national and international research groups, institutions, and clinical partners. (Description adapted from working group website: see link above) Research projects
2
Research areas
2
Research types
2
Research networks
0
People
1
Research projects
Development and evaluation of interactive seminars for prospective doctors to destigmatise people with ME/CFS (SEE-ME)
Project status:
OngoingCountry:
GermanyPrincipal investigator:
Christine Blome, Rachel Sommer
Organisations:
University Medical Center Hamburg-Eppendorf (UKE)
Research period:
Not available
Research types:
Epidemiological research
Research areas:
General
Diagnostic latency in ME/CFS and post-COVID: causes, consequences and potential for improvement – a mixed methods study (DiaMECO)
Project status:
OngoingCountry:
GermanyPrincipal investigator:
Christine Blome
Organisations:
University Medical Center Hamburg-Eppendorf (UKE)
Research period:
2024-10
to 2027-09
to 2027-09
Research types:
Epidemiological research
Research areas:
General
Contact
ME/CFS Research Foundation
Ballindamm 27, 20095 Hamburg, Germany
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