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Research networks

This section of the ME/CFS Research Register (beta version) provides an overview of research networks centred on ME/CFS. These are networks that involve groups of people, working groups, and organisation concerned with the implementation of a number of sub-projects. By clicking on one of the research networks below, you will be directed to a separate page. There you will find research projects, areas, and types, as well as working groups, people, and publications connected with the research network. A description of the current scope of the ME/CFS Research Register (beta) can be found on the starting page (Home).
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13 of 13 research networks

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COVID-19 Research Network Lower Saxony (COFONI)
Description:
COFONI is a research network funded by the Lower Saxony Ministry of Science and Culture (MWK), consisting of 5 partners from the German state of Lower Saxony. These partners combine their core scientific competencies to research key areas which are critically relevant to combat the SARS-CoV-2 pandemic and its long-term effects.
Research type:
Clinical research
Research projects:
1
Country:
Germany
Characterisation of autoimmune responses to identify targets in ME/CFS (CURE-ME)
Description:
The CURE-ME research network aims to investigate how autoimmune processes induced by the Epstein-Barr Virus (EBV) can lead to a change in the healthy immune response. Immunological processes in samples from adolescents and adults will be examined and characterised, and specific immune cells that are activated by an EBV infection are to be specifically inhibited.
Research type:
Basic research
Research projects:
2
Country:
Germany
Clinical analyses of immunological and metabolic factors in ME/CFS (MIRACLE)
Description:
The MIRACLE research network aims to investigate immunological, inflammatory and metabolic signaling pathways in ME/CFS. After recruitment using web-based questionnaires and online video consultations, various aspects of the signaling pathways will be investigated. Various processes of high-density lipoprotein (HDL) and the role of granulocytes will be investigated.
Research type:
Basic research
Research projects:
2
Country:
Germany
Contribution of sleep-related biomarkers to the pathophysiology of ME/CFS (SLEEP-NEURO-PATH)
Description:
SLEEP-NEURO-PATH aims to characterise biological mechanisms associated with brain dysfunction in ME/CFS, such as cognitive disorders, fatigue, headaches, sleep disorders and hypersensitivity to sensory stimuli. Dysfunctions of neuronal networks (detected using selected sleep characteristics) will be assessed by multimodal imaging and biochemical examinations.
Research type:
Clinical research
Research projects:
3
Country:
Germany
Identification of biopathological signatures of post-exertional malaise in ME/CFS (BioSig-PEM)
Description:
The BioSig-PEM research network aims to investigate the cardinal symptom of ME/CFS, the stress-related worsening of symptoms Post-exertional Malaise (PEM). The aim is to identify central pathophysiological signatures of PEM phenotypes in ME/CFS patients with the help of fitness trackers, molecular and immunological as well as imaging methods.
Research type:
Basic research, Clinical research
Research projects:
6
Country:
Germany
Immune Mechanisms of ME (IMMME)
Description:
The Immune Mechanisms of ME (IMMME) research network, funded by the German Federal Ministry for Education and Research (BMBF), is conducting research into the immunological pathomechanisms of post-infectious ME/CFS. In this interdisciplinary research network, scientists and doctors from the fields of immunology, neurology, infectiology, rheumatology and pediatrics work together.
Research type:
Basic research
Research projects:
5
Country:
Latvia, Germany
MeCfs Lines – A multidisciplinary consortium and biobank for unravelling ME/CFS aetiology in Lifelines
Description:
In the ME/CFS Lines consortium, UMC Groningen is working with several research partners to build a ME/CFS cohort (patient group) and biobank based on the existing Lifelines population cohort. Using the biomaterials, genetics, microbiome, antibody repertoire, proteome and metabolome are mapped in ME/CFS patients.
Research type:
Clinical research, Epidemiological research
Research projects:
4
Country:
Netherlands
National Clinical Studies Group (NKSG)
Description:
The National Clinical Studies Group (NKSG), funded by the German Federal Ministry for Education and Research (BMBF), is an interdisciplinary network of physicians and scientists with the aim of conducting translational research and therapy studies for the treatment of ME/CFS and post-COVID Syndrome (PCS).
Research type:
Clinical research
Research projects:
11
Country:
Germany
National Pandemic Cohort Network (NAPKON)
Description:
The National Pandemic Cohort Network (NAPKON) was initiated in July 2020 as part of the Network University Medicine (NUM) and bundles previously decentralized national research activities in a common framework of cohorts and infrastructures.
Research type:
Epidemiological research
Research projects:
1
Country:
Germany
Network University Medicine (NUM)
Description:
The Network University Medicine (NUM) was founded in April 2020 as part of crisis management against the COVID-19 pandemic to coordinate clinical COVID-19 research across the entire university medical community. NUM's research projects have direct clinical relevance and strive for findings that are immediately adaptable to practice in order to provide better care for patients.
Research type:
Epidemiological research
Research projects:
2
Country:
Germany
Serotonin and immunomodulation in ME/CFS (SERIMM)
Description:
The SERIMM research network aims to shed light on evidence of an altered metabolism of the neurotransmitter serotonin and a dysregulation of the immune system. To this end, it is planned to use high-throughput analysis methods to examine samples from patient cohorts and COVID-19 animal models (mice, hamster) in parallel.
Research type:
Basic research
Research projects:
5
Country:
Germany
Studies on vascular dysfunction and hypoperfusion in patients with ME/CFS (VADYS-ME)
Description:
The aim of the VADYS-ME research network is to investigate factors and mechanisms of vascular function and blood flow in ME/CFS using complementary research approaches and methods. To this end, extensive clinical data will be combined with functional studies, complex imaging methods and metabolic and laboratory tests in various tissues and organs.
Research type:
Basic research, Clinical research
Research projects:
2
Country:
Germany
The Netherlands ME/CFS Cohort and Biobank (NMCB)
Description:
The Netherlands ME/CFS Cohort and Biobank (NMCB) consortium is a national collaboration of research institutes, patient organisations and clinical centres. The consortium focuses on biomedical research on ME/CFS.
Research type:
Basic research, Epidemiological research
Research projects:
6
Country:
Netherlands